Family Advocacy Groups

Here you will find links to websites, facebook pages and other connections to family groups, private organizations, health and research information and more that can provide you with information you need about disability rights, opportunities and services in your community, across New York State, and beyond. This section will be adding resources, so check back here regularly for more resources.


Community First Choice Option (CFCO), authorized in the Affordable Care Act, allows states to expand access and availability of long term services and supports.

Developmental Disabilities Alliance of Western New York (DDAWNY) Families Committee

Disability Rights New York (DRNY)

Eastern New York Developmental Disabilities Advocates

NYC Family Advocacy Information Resource (NYCFAIR)

New York State Office for People With Developmental Disabilities (OPWDD)

OPWDD Developmental Disabilities Regional Offices

New York State Partners in Policymaking